Joanne’s passion for Paediatric Patient Safety and Care of those Harmed by Healthcare comes from suffering the loss of her then only child, Jasmine in 2011.
In 2013 Joanne set up the website www.mothersinstinct.co.uk to support improvements in communication and parent engagement in children’s patient safety, and to provide information and support to parents bereaved through healthcare harm. In 2020 Joanne co-founded the Harmed Patients Alliance www.harmedpatientsalliance.org.uk, working for a restorative approach to healing and learning after healthcare harm.
Joanne was a member of the Infant Children and Young Persons Patient Safety Expert group for NHS England and subsequently the National Patient Safety Response Advisory Panel.
Joanne was a steering group member for development of the National Quality Board Learning from Deaths: Guidance for NHS Trusts on Working with Bereaved families and carers.
Joanne is a patient/public advisor in a number of research projects including BeArH – Before Arrival at Hospital, MOPPet – Medicines Optimisation in Paediatric In Patients, PFI-SII – Patient and Family Involvement in Serious Incident Investigations, and LfDLA Learning from Deaths – Learning and Action.
Joanne speaks at local and national training events and conferences on Parent Engagement in Paediatric Patient Safety, Harmed Patient and Family Engagement after harm, and Care of those Harmed by Healthcare.
I am qualified in children’s medicine (paediatrics) and public health, so I have the privilege to be a children’s doctor in a very broad sense.
As Director of the Evelina London Child Health Partnership, I am leading the development and evaluation of a new model of children’s everyday health care in south London. My academic work focuses on children’s health services and policy in the UK and other European countries.
It’s my personal and professional goal to improve child health through strengthening and applying science in children’s health services, systems, and policy.
Sue trained as a Registered General Nurse at St Thomas Hospital, Qualifying in 1987. After working in various roles, Sue started as a clinical research nurse in 1997, supporting the set up and delivery of both commercial and academic work. During this time she also studied for and MSc in Research and Evaluation for Health Care Professionals and was deputy chair of a NHS Research Ethics Committee for 5 years.
In 2003 Sue became the R&D Manager at the Leicestershire Primary Care Research Alliance just as the CCGs were forming and oversaw the implementation of the new Research Governance Framework for Health and Social Care within the primary care arena. During this period Sue worked with the Leicestershire Northamptonshire and Rutland R&D community to put in successful bids for the NIHR clinical research networks, Comprehensive, primary care, stroke and diabetes and set up the Leicester Centre for Ethnic Health Research.
Sue moved to Northamptonshire to develop R&D across the PCTs in the county in 2008 and now leads the Northamptonshire R&D Service, (formerly PCT R&D). The service has 2 key objectives:
She is leading on the development of a countywide R&D strategy on behalf of the CCGs, working with all other stakeholders through a Northamptonshire Research Forum. The aims is to work together to ensure a vibrant culture within the county that supports research, innovation and evidence based practice, linked with population needs and commissioning priorities. She also works across the health economy to ensure the delivery of high quality National Institute for Health Research (NIHR) portfolio research, support the development of evidenced based practice, and generation of research sensitive to local needs in primary care.