Advisory Panel


Advisory

The ASK SNIFF advisory panel provides advice and expertise from outside of the core ASK SNIFF research team to inform each stage of the work and support decision making related to the programme of research. Members provide specialist expertise and advice as appropriate to the specific focus of each project and the stage of the programme of work. Individuals with clinical, research and service user expertise contribute to the project in this way.

Dr. Juliet Usher-Smith

Clinical Lecturer in Primary Care, The Primary Care Unit, University of Cambridge

Juliet Usher-Smith is a Clinical Lecturer in Primary Care at the University of Cambridge and a General Practitioner in Cambridge. Her research aims to better understand and improve the diagnostic pathway in primary care and the management of risk from the perspective of both patients and clinicians. Her recent work has focused on the diagnosis of type 1 diabetes in children and developing the evidence base on which to base an intervention to improve the timely diagnosis of the disease in children.

She is also a Fellow in Medicine at Murray Edwards College, University of Cambridge, where she teaches undergraduate medical students and leads seminars on diagnosis and risk within the Cambridge University Clinical School.

Juliet was a core ASK SNIFF team member between 2014-2016, particularly during the ASK PETra phase of the ASK SNIFF programme (2015-2016).

Research Gate: https://www.researchgate.net/profile/Juliet_Usher-Smith

Email address: jau20@medschl.cam.ac.uk

Other links: http://www.phpc.cam.ac.uk/people/pcu-group/pcu-senior-research-staff/juliet-usher-smith/

Dr. Caroline Jones

Senior Researcher, Nuffield Department of Primary Care Health Sciences, University of Oxford

Caroline is a Senior Researcher at the University of Oxford who is working on a number of studies relating to children’s health and diagnostics. Her research aims to improve the early identification of serious illness. Caroline uses a combination of quantitative and qualitative research methods (mixed methods). Many of her projects incorporate interviews with patients/caregivers and healthcare providers. Caroline also runs a Public Advisory Group to involve patients and the public in each step of her research.

Caroline’s background is in medical anthropology and public health. In her previous role at the Medical Research Council Epidemiology Unit in Cambridge, Caroline investigated ways to encourage people to walk and cycle for transport. Prior to that, Caroline’s doctoral research at Durham University, with a 3-month overseas visit to Brown University, explored children’s sleep, and the link between short sleep duration and obesity.

At Oxford, Caroline is a module co-ordinator for a module entitled Mixed Methods in Health Care Research within the Masters in Evidence-Based Health Care course.

Caroline was a core ASK SNIFF team member between 2011-2014, particularly during the ASK SARa, ASK PIP and ASK SID projects.

Email address: caroline.jones@phc.ox.ac.uk

Other links: http://www.phc.ox.ac.uk/team/researchers/caroline-jones

Dr. Mariyum Hyrapetian

Paediatric registrar, Whittington Health

Mariyum is a paediatric registrar at The Whittington Hospital and has been working with the ASK SNIFF team for the last 18 months, consenting parents and capturing video footage of unwell children for incorporation into the safety netting resource for parents of acutely sick children. Capturing the footage is a delicate process as parents of unwell children are extremely vulnerable and under a great deal of emotional strain but with empathy and clear explanation there has been good uptake from parents and children agreeing to take part. A wide variety of video clips have been captured and one clip of an important paediatric illness has already been incorporated into an educational resource.

Mariyum is passionate about improving healthcare services for children and their families, leading a variety of projects and presenting her work aiming to improve services for children with suspected maltreatment, prolonged jaundice and neonates attending the emergency department. She has published in peer reviewed journals and is co-author of a chapter in a recently published Child Protection training guide.

Email address: m.hyrapetian@nhs.net

Mrs Joanne Hughes

Mother’s Instinct Support Group, UK

www.mothersinstinct.co.uk

I am the founder of Mothers Instinct, having launched the group in 2013 following the avoidable death of my then only precious child, Jasmine in 2011.

I became passionate about paediatric patient safety following Jasmines death and it is my ambition for Mothers Instinct to provide a service to both the NHS and the public for learning from tragedy in a meaningful, human way to reduce harm in the future.

I draw on my experiences both as a service user for whom things went wrong, and as a current service user (I have a toddler son) as well as those of the people who contact me, to represent parental views on service design and patient safety initiatives.

I am very passionate about the Duty of Candour having experienced first hand the torturous path many families are forced upon when there is lack of openness following errors, and firmly believe openness on a national level is an absolute must if patient safety is to improve.

I am a member of the Infant, Children and Young Peoples Patient Safety Expert Group for NHS England.

Prior to having Jasmine my background was in Science and Business. I studied Chemistry to HNC level, Business Studied to HNC, and gained a first class BSc Hons. Degree with the Open University that included Health and Disease, Science of the Senses, Infectious Disease, and Business modules. Until becoming pregnant with Jasmine I worked in the pharmaceutical industry working closely with the NHS which allowed me to get an in depth understanding of the structure of the NHS, the organisation of hospitals and primary care settings, and the pressures on the NHS and those working within it. I regularly gave presentations to GP’s, Junior Hospital Doctors and Consultants, and hope to develop training packages for NHS patient safety workshops based on patient stories, as part of the Mothers Instinct offering.

Please click on this link to watch my short video:

https://www.youtube.com/attribution_link?a=4BgQCT42qnU&u=/watch%3Fv%3DDTRyKeP-OVM%26feature%3Dem-upload_owner 

Dr Ingrid Wolfe

Paediatric Public Health Consultant, Evelina Children's Hospital, Clinical Senior Lecturer, King's College London

I am qualified in children’s medicine (paediatrics) and public health, so I have the privilege to be a children’s doctor in a very broad sense.

As Director of the Evelina London Child Health Partnership, I am leading the development and evaluation of a new model of children’s everyday health care in south London. My academic work focuses on children’s health services and policy in the UK and other European countries.

It’s my personal and professional goal to improve child health through strengthening and applying science in children’s health services, systems, and policy.

 

Dr Matthew Thompson

Professor and Vice Chair of Research in Family Medicine and Adjunct Professor of Pediatrics and Global Health at the University of Washington, Seattle

Dr Thompson is a General Practitioner and clinical researcher currently based at the University of Washington in Seattle where he is Professor and Vice Chair of Research in Family Medicine and Adjunct Professor of Pediatrics and Global Health. As former clinical academic at the University of Oxford Department of Primary Health Care, he has led numerous clinical studies on the recognition of the acutely ill child in primary care settings. These research studies have included earlier recognition of children with meningococcal disease, pneumonia, leukaemia, and diabetes.  In addition to improving the evidence base for the clinical signs and symptoms that children with serious illnesses have in primary care settings, he has also researched related areas such as the role of new diagnostic technology,  improving the use of vital signs in children, and the importance of safety netting in these settings. He has been involved with the ASK SNIFF group since its inception, but now contributes to the group as an international advisor.